Tuesday, November 8, 2011
Eight Pounds!
Last week at Callum's two-year checkup, we also had a weight check for Declan. He weighed in a whopping 8 lbs., .5 oz. Well, really it was 2.5 oz., but he had just taken two ounces of the bottle, so that part doesn't really count. That averages to about an ounce a day, which is what the goal is. Baby steps, but very exciting nonetheless! We also hit up the developmental pediatrician last week, and besides trying to help figure out why Declan's become so squirmy and problematic at the end of feedings (we're thinking it might be acid reflux so he's on medicine to try that), she said everything looks great and we don't have to see her again until next month. We've had so many appointments the last few weeks it's nice that a few are starting to slow down.
Sunday, November 6, 2011
Two Years!
Poor Callum has been a bit neglected on the blog lately with the arrival of his little brother, so it's high time he gets the recognition he deserves. He turned the ripe old age of two and celebrated with a party last weekend. I must admit, I never got tired of asking him what he wanted for his birthday--he matter-of-factly always said "train birthday cake" since cake is the only thing he knows to associate with birthdays. So since that's the only thing he wanted, we indulged since it was easy enough of a present (I'll post party pictures as soon as I upload them to the computer).
His official two year picture:
To catch up, Callum is such an amazing, funny kiddo. He is always full of energy and loves to play and laugh. He is currently obsessed with trains, loves to read books, and is starting to be a great helper around the house. We had a couple of weeks where he was really trying our patience, but his world has been a bit topsy-turvy lately, so he's done really well with everything overall.
It never ceases to amaze us at his ability to remember and verbalize things. He will easily remember something from a couple of months ago and talk about it. There are very few things he cannot pronounce and he can easily say full sentences. He loves music (he has been working on practicing the dulcimer and knows how to strum and pluck a guitar) and can sing the ABC song all the way through. At night we rock and sing with him for a couple of minutes and he always requests Wheels on the Bus. He picks what goes on the bus, and he chooses anything from the normal to the abnormal (we have done doors, trains, bicycles, diapers, and trees to name just a few).
Food is also something Callum loves. He was up to 31 lbs., 6 oz. at his check-up, which puts him at around the 75% for weight, when he used to steadily be in the lower percentiles. The doctor commented, "I see he has found sweets." We had to tell her no, he's just found food. He eats most anything, but his current favorites are bananas, crackers, and cheese.
He also is a great big brother. He sometimes isn't spatially aware of Declan, but he often wants to hug or hold him. The other day he put on some new jeans and he immediately had to run out of his room to show them off to Declan. He imitates what we do with Declan and likes to try and burp him and hold his hand.
Two Months
| Almost smiling for the camera! |
| Just hanging in the bouncy seat. |
Declan is officially two months old now! This past month has been quite the adventure and very scary at times, but it's definitely been worth it to have such a cutie in our lives. He is slowly but steadily gaining weight and weighed in at 7 lbs., 3.5 oz. at his check-up. He has also started to smile a few times, which is a milestone I'm very glad to see. There are still some areas that are being followed for his health and development, but otherwise the surgeries seem to have really helped and he has really picked up on his eating. Declan is up to eating 3 ounces every 3 hours, which may not sound like much really, but it's up to our goal amount--which seemed like it would never happen after we brought him home from the hospital. Making it through this month is definitely a huge celebration in this house!
Here is his official two-month picture with Squeaks.
He wasn't happy with us when we told him it was best to be awake for the pictures.
Some random pictures to catch up a bit from the last month:
| Cutie before surgery |
| The three Green boys (and a random squash)--happy birthday Daddy! |
Tuesday, October 11, 2011
Home!
12 days and three surgeries later, we're finally home! We were able to come home early Monday afternoon. Things have been going well so far, and we've definitely already been able to see a difference in Declan's alertness. We also did a weight check yesterday and were happy that he didn't lose any weight from being in the hospital, so now we can focus on plumping him up. I'll work on posting pics and more details soon!
Tuesday, October 4, 2011
Unexpected Delay
We are currently still in the hospital with Declan, and it has been an emotional past 48 hours. He was transferred to the heart center on Saturday morning, which we were really excited about. He was doing great as far as pain and alerness, and there were no negative side effects from the surgery. He had also started eating well, and was eating more than he normally did before the surgery, which was a huge excitement.
Late Saturday morning, however, he had a hard time keeping down his milk. He started spitting up a neon yellow color substance and seemed like he was having stomach troubles. They suspected horrible acid reflux, so we stopped feeding and put him on an IV to give medicine time to kick in. Sunday afternoon, he was able to take a bit of Pedialyte and then later we tried feeding again a little bit of milk. As he was taking that, he spit up more of the neon yellow and continued to do this, so it was back to the IV with a consult in to the doctors. They did know that this was not something related to the surgery, although it could be a strange effect from a medicine.
Overnight Sunday he started spitting up bright green fluid, and the nurses assured us they would make sure we had answers for the problems as soon as the doctors could look at him. He had an upper GI test done Monday and this showed some sort of blockage in the intestine, but they weren't sure what. The radiologist suspected a narrowing that they may have to go in and open up, but nothing serious. The next thing we knew, however, a couple of people from the surgical team came to talk to us and let us know that Declan would be going in for emergency intestinal surgery within the hour because the green fluid was a very bad sign. No one has ever mentioned anything wrong with the intestines, so this was quite a shock to us and was difficult emotionally since we already had so many other things to worry about, not to mention fear of problems of having a major surgery only four days after heart surgery.
The surgery itself took about three hours, and it turned out that he had malformed intestines--this means they began twisting around each other so food cannot get through (it's pretty much like when a garden hose gets wadded up and kinked in several places). So they had to manually take it out and unwind it. Definitely not a pleasant thought!
At this point we are back in ICU, but we should be able to head back up to the heart center this afternoon if all continues to go well. We're looking at another possible 5-7 days in the hospital, so it will be another long week for us. Right now we are so extremely thankful and blessed that problems happened when they did. This was totally unrelated to the heart surgery, and he just so happened to have the problems while we were still here but had already recovered mostly from the first surgery. Had it gone on much longer, his intestines would have started dying off and we would be dealing with some major permanent damage. So while we really wish we didn't have to deal with two major surgeries back-to-back, we're so very glad we have answers and a fix for the problems he was having over the weekend. We're just hoping this is Declan's last surgery for a long time! Oh, and while they were at it, they also took his appendix out--it wasn't causing problems, but because of the malformation it ends up in the wrong spot of the body so if he were to have problems with it later in life, he would probably be misdiagnosed. Too bad they couldn't go ahead and take out any other potential unnecessary problem organs!
Late Saturday morning, however, he had a hard time keeping down his milk. He started spitting up a neon yellow color substance and seemed like he was having stomach troubles. They suspected horrible acid reflux, so we stopped feeding and put him on an IV to give medicine time to kick in. Sunday afternoon, he was able to take a bit of Pedialyte and then later we tried feeding again a little bit of milk. As he was taking that, he spit up more of the neon yellow and continued to do this, so it was back to the IV with a consult in to the doctors. They did know that this was not something related to the surgery, although it could be a strange effect from a medicine.
Overnight Sunday he started spitting up bright green fluid, and the nurses assured us they would make sure we had answers for the problems as soon as the doctors could look at him. He had an upper GI test done Monday and this showed some sort of blockage in the intestine, but they weren't sure what. The radiologist suspected a narrowing that they may have to go in and open up, but nothing serious. The next thing we knew, however, a couple of people from the surgical team came to talk to us and let us know that Declan would be going in for emergency intestinal surgery within the hour because the green fluid was a very bad sign. No one has ever mentioned anything wrong with the intestines, so this was quite a shock to us and was difficult emotionally since we already had so many other things to worry about, not to mention fear of problems of having a major surgery only four days after heart surgery.
The surgery itself took about three hours, and it turned out that he had malformed intestines--this means they began twisting around each other so food cannot get through (it's pretty much like when a garden hose gets wadded up and kinked in several places). So they had to manually take it out and unwind it. Definitely not a pleasant thought!
At this point we are back in ICU, but we should be able to head back up to the heart center this afternoon if all continues to go well. We're looking at another possible 5-7 days in the hospital, so it will be another long week for us. Right now we are so extremely thankful and blessed that problems happened when they did. This was totally unrelated to the heart surgery, and he just so happened to have the problems while we were still here but had already recovered mostly from the first surgery. Had it gone on much longer, his intestines would have started dying off and we would be dealing with some major permanent damage. So while we really wish we didn't have to deal with two major surgeries back-to-back, we're so very glad we have answers and a fix for the problems he was having over the weekend. We're just hoping this is Declan's last surgery for a long time! Oh, and while they were at it, they also took his appendix out--it wasn't causing problems, but because of the malformation it ends up in the wrong spot of the body so if he were to have problems with it later in life, he would probably be misdiagnosed. Too bad they couldn't go ahead and take out any other potential unnecessary problem organs!
Thursday, September 29, 2011
Surgery Update
Declan's surgery this morning went well this morning and he is recovering well so far. We had to be here at the hospital at 6:00 a.m. for prep work, which really just consisted of sitting in a little cube-like room for a while and someone would pop in every so often. They took him back around 7:20 and then we spoke with the doctor around 10:00 a.m. and were finally able to see him in the ICU a bit after 11:00. He already has his breathing tube out but is on medicine for the pain and has several lines. Overall everything is going really well.
Thank you for the thougths and prayers, and we will keep everyone updated as Declan continues recovering!
Thank you for the thougths and prayers, and we will keep everyone updated as Declan continues recovering!
Saturday, September 24, 2011
One Month Old!
Time flies when you're having fun. . . and taking care of two kiddos under two. It's amazing to think Declan is officially one month old today (and it's amazing we've been parents of two kids for a month now and haven't totally screwed anything up yet). It has definitely been a crazy, busy, and extremely emotional last month with a lot of things we could do without, but we wouldn't trade it for the world since we have such a great family:
I'm not sure how tall Declan is now, but on Friday he weighed 6 lbs., 10 oz. Definitely a slow gain for the month and he's still a tiny peanut, but I have to remind myself it's not too bad considering how far we've come in the past month.
From this:
To this:
We still have a ways to go in some areas, but right now he's pretty much hitting all of his one-month milestones with flying colors except for the always waking up to eat on his own. He effectively poops, pees, follows people with his eyes, practices holding his head up, hates cooperating with diaper changes, and spits up with the best of them. He very rarely cries, but when he does, it's quite forceful. And he very patiently puts up with his older brother's antics--who adores him, by the way, but doesn't always understand that Declan is an actual person that we have to be careful with. But more on that another time.
In traditional fashion, Declan now has his own Build-A-Bear animal, appropriately named Squeaks for Declan's often squeaky noises.
In other news, Declan will be having heart surgery on Thursday, so please keep him in your thoughts and prayers (and poor Callum who will have his normal Mommy and Daddy time interrupted again for a few days). They have been monitoring his heart since just before he was born, and the surgery is for closing the valve that is open before birth and should close after birth, but his hasn't. He is having some other issues possibly related to this still being open, so they need to take care of it ASAP so we know if it's related to know how to work on the other problems. It's not an open-heart surgery and in the world of heart surgery is relatively minor, so we're hoping for a very positive outcome and a fast recovery!
I'm not sure how tall Declan is now, but on Friday he weighed 6 lbs., 10 oz. Definitely a slow gain for the month and he's still a tiny peanut, but I have to remind myself it's not too bad considering how far we've come in the past month.
From this:
To this:
We still have a ways to go in some areas, but right now he's pretty much hitting all of his one-month milestones with flying colors except for the always waking up to eat on his own. He effectively poops, pees, follows people with his eyes, practices holding his head up, hates cooperating with diaper changes, and spits up with the best of them. He very rarely cries, but when he does, it's quite forceful. And he very patiently puts up with his older brother's antics--who adores him, by the way, but doesn't always understand that Declan is an actual person that we have to be careful with. But more on that another time.
In traditional fashion, Declan now has his own Build-A-Bear animal, appropriately named Squeaks for Declan's often squeaky noises.
| Getting acquainted |
| Official one-month photo |
In other news, Declan will be having heart surgery on Thursday, so please keep him in your thoughts and prayers (and poor Callum who will have his normal Mommy and Daddy time interrupted again for a few days). They have been monitoring his heart since just before he was born, and the surgery is for closing the valve that is open before birth and should close after birth, but his hasn't. He is having some other issues possibly related to this still being open, so they need to take care of it ASAP so we know if it's related to know how to work on the other problems. It's not an open-heart surgery and in the world of heart surgery is relatively minor, so we're hoping for a very positive outcome and a fast recovery!
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